Thursday, November 21, 2013

Isaac's neurologist visit....

Isaac had his visit today with the pediatric neurologist. Here's what we got:
Diagnosis 1: Sensory Integration Dysfunction
Diagnosis 2: Autism

If you google Sensory Integration Dysfunction..it corrects to Sensory Processing Disorder.
Apparently, Sensory Processing Disorder is NOT an Autism Spectrum Disorder. It's a disorder all on it's own.

What we have next:
~Speech Therapy: Starts Dec 2 at Germantown Language
~Appt with Psychologist
~Occupational Therapy, the in a hurry lady at Methodist Germantown told me to just fax that prescription over. Didn't want name,number or anything. This leads me to believe we'll be added to a wait list. This would be for Sensory Processing Disorder.
~ABA Therapy, or Applied Behavioral Analysis Therapy. Since this is covered by the mental part of the our insurance, not the standard like everything else, I have to call back in the morning and find out where he can go for this. And I do anticipate some kind of wait list for that too.

That's 3 different places for 3 different therapies. My wallet just cried, as I'm sure I will later.

I have read through some sites already, and am thoroughly overwhelmed at what I, in all honesty, need to know like right now. I'm extremely tired today and will just have to stop and try to do some more reading tomorrow, maybe. Sounds bad I know, but I have read a few things to try to prepare me some for how Isaac may react or do at Disney. Could be no big deal, or he could be so overwhelmed by all the people, sights, sounds and smells that he might not eat. I've also read a post or two tonight about how even with all of the senses on complete overload, children with autism have actual had miracles happen at Disney...like saying a first word. I would sob instantly if Isaac actually spoke a word. One word. It could even be "Daddy" ;) I don't plan on changing our schedule at Disney, even after today. I do however plan on taking extra things, like a big blanket that covers most of the stroller to block everything out if he gets overwhelmed, and tons of oatmeal creme pies. His favorite.

What I don't know:
~How often/frequency of any of the above mentioned therapies. Twice a week? Once a week? Every other week? Who knows. No one is giving clues.
~If he falls under high functioning, middle functioning, or low functioning. I'm hoping that the psychologist can help out with this one.
~How we're going to pay for all these appointments, one timers, or reoccurring.
~Potty training. It does not appear that Isaac will be potty training anytime soon. We were just advised by his pediatrician to not even think about it right now. Good thing I just found out that Pampers makes a size 7. It could happen in a few months...might be a year or two or ...
~How D is doing with all of this news? I don't know. He won't really talk to me about it. At all. Yeah, yeah, he doesn't talk most of the time anyway to most people, but with me it's different. When I start to talk about it, he changes the subject or doesn't say anything, or I don't know what. He's processing I guess ;)

At this point I am taking it one appt at a time, and will be doing more reading, or research if you want to call it that, as I get a few minutes. In the meantime, I will be preparing and packing to take my Autistic, fabulous, sensory issue, cute as all get out, chunky, curly haired, looks just like daddy, and full of life little man to Disney...to see his favorite...MICKEY MOUSE! 17 days. Yay!!

2 comments:

  1. The last sentence is my favorite! :) Let us know how we can help. We love our nephew/cousin!

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  2. The psychologist and ABA therapist will hopefully be able to answer some of your questions. Good luck <3

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